DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) - a painful genetic condition which causes the skin to blister and shear at the slightest friction, or even spontaneously.
DEBRA focuses its work in three areas:
■ We fund pioneering research to find effective treatments and, ultimately, a cure for EB.
■ We fund, in partnership with the NHS, an enhanced specialist EB Nursing Service to deliver optimal healthcare to children and adults living with EB.
■ We provide social care support to help people live with dignity. This is ...